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Just So Elina

Tag: real talk

Chronic Illness wellbeing

A Letter To My Younger Self | EDS Awareness Month

May 31, 2020 by JustSoElina

To my younger self, I just want to start off saying I’m sorry, I’m sorry for everything that’s happening to you, I’m sorry that for a long time no one but your mum will believe you, when you say something is wrong. And I’m sorry for hating you for so long, It was not you …

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Lifestyle

How She Is The Universe Became A Part Of My World

April 23, 2020April 23, 2020 by JustSoElina

You know those people that come into your life and completely turn it upside down but in the best possible way? That’s what it was like meeting Laura Pena, a very talented film maker , speaker and the founder of She Is The Universe. An incredible docu series that’s led Laura to travel around the …

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Chronic Illness

Why The Treatment Of Chronically Ill & Rare Disease Patients NEEDS To Change

February 29, 2020February 29, 2020 by JustSoElina

Disclaimer – this post is not intended to bash doctors or the medical system, merely to bring to light the treatment millions around the world face on a daily basis. In honour of Rare Disease Day I wanted to cover a topic most aren’t often aware is an issue. That being the treatment of chronically …

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Chronic Illness

Getting A Diagnosis After 9 Years ~ EDS

February 26, 2020February 27, 2020 by JustSoElina

I still can’t believe I finally get to share this, I had honestly given up all hope that I would ever get a diagnosis. But on the 21st of January 2020 at 11:00am I received my diagnosis! I have Hypermobile Ehlers Danlos Syndrome, a genetic connective tissue disorder that effects every system of my body …

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Think Pieces

Australia Bushfire Crisis: The True Effect & How You Can Help

January 17, 2020January 17, 2020 by JustSoElina

*trigger warning – bushfires* My home is on fire, Australia is currently being destroyed by the worst bushfires anyone has ever seen. Our country is no stranger to extreme weather, after all it is known as “The sunburnt country, a land of sweeping plains, of ragged mountain ranges, of droughts and flooding rains” – DM. …

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Chronic Illness Think Pieces wellbeing

Honouring The Season Of Life Your In

November 26, 2019November 26, 2019 by JustSoElina

I was recently listening to The Rise & Conquer Podcast Ep:37 Honour The Season Your In by Georgie Stevenson. In the episode Georgie said something that really hit home for me. ”Honour the season your in, stop looking around and feeling like your missing out or your not doing what you should be doing. Really …

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Chronic Illness

The Reality Of Living With A Chronic Illness

July 21, 2019July 21, 2019 by JustSoElina

Before I got sick I didn’t even know what a Chronic Illness was. Over 2 years later and I now know more about Chronic Illness than I ever thought I would. Over 2 years later I’m still fighting to get answers to what is wrong with me. Over 2 years later and I’m still fighting …

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About Me

Recent Posts

  • Working With Chronic Illness Ft The National Youth Disability Summit
  • Shining A Light On Rare Diseases: How You Can Help
  • Adjusting to life without sound
  • The true meaning of indomitable spirit
  • Rare Disease Day 2021

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