Disclaimer – this post is not intended to bash doctors or the medical system, merely to bring to light the treatment millions around the world face on a daily basis. In honour of Rare Disease Day I wanted to cover a topic most aren’t often aware is an issue. That being the treatment of chronically …
I still can’t believe I finally get to share this, I had honestly given up all hope that I would ever get a diagnosis. But on the 21st of January 2020 at 11:00am I received my diagnosis! I have Hypermobile Ehlers Danlos Syndrome, a genetic connective tissue disorder that effects every system of my body …
I was recently listening to The Rise & Conquer Podcast Ep:37 Honour The Season Your In by Georgie Stevenson. In the episode Georgie said something that really hit home for me. ”Honour the season your in, stop looking around and feeling like your missing out or your not doing what you should be doing. Really …
The irony of this post is unreal, I wrote it a few days before halloween with the purpose of going up on Halloween night with a makeup look that to me showed how I’ve been feeling on the inside – broken. But that never happened as at 2am on halloween morning I ended up in …
A few months ago I enrolled in a community AUSLAN (Australian Sign Language) course through my local deaf services. For those who don’t know sign language is “a visual form of communication that uses hand, arm and body movements to convey meaning” – NDP.org I have always wanted to learn sign language so I figured …
Losing friends, at any age is hard, but it feels even harder when it happens in your teens, at school, and even harder when you’re chronically ill. I got glandular fever when I was 16, just before all my exams that year and consequently missed them all. I decided to leave the school I was at …
*This post contains a gifted item from YuYu Bottle* “ I’m constantly in pain. Yes, constantly. Every single second. The pain is still there when I’m smiling. The pain is still there when I don’t talk about it. When I say “I’m fine” I have a very different definition than you do” – @strongerthanpots Chronic …
Before I got sick I didn’t even know what a Chronic Illness was. Over 2 years later and I now know more about Chronic Illness than I ever thought I would. Over 2 years later I’m still fighting to get answers to what is wrong with me. Over 2 years later and I’m still fighting …
She hides behind her smile, But she can only keep it up a while, The pain gets to be too much sometimes, Leaving her only able to reminisce on the fun times, Before her injury and illness, When how she looked was no one’s business, When her body obeyed every command, And every lesson didn’t …
Going back to school can be stressful enough, let alone if you have a chronic illness or chronic pain condition to manage on top of that. I wanted to help make back to school season less daunting, but as I have only been sick for 1.5 years and I spent a year of that off …