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Just So Elina

Tag: disabilities

Chronic Illness

Draling With Medical Resentment

November 1, 2020November 1, 2020 by JustSoElina

Its hard not to feel angry when symptoms are ignored by medical professionals or recomended treatments create new problems and or take away more quality of life. If you don’t follow their treatment your seen as uncompliant. You need psychiatry to get over your “fear” of said treatment. But no one says anything when it …

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Chronic Illness wellbeing

A Letter To My Younger Self | EDS Awareness Month

May 31, 2020 by JustSoElina

To my younger self, I just want to start off saying I’m sorry, I’m sorry for everything that’s happening to you, I’m sorry that for a long time no one but your mum will believe you, when you say something is wrong. And I’m sorry for hating you for so long, It was not you …

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Chronic Illness

Why The Treatment Of Chronically Ill & Rare Disease Patients NEEDS To Change

February 29, 2020February 29, 2020 by JustSoElina

Disclaimer – this post is not intended to bash doctors or the medical system, merely to bring to light the treatment millions around the world face on a daily basis. In honour of Rare Disease Day I wanted to cover a topic most aren’t often aware is an issue. That being the treatment of chronically …

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Chronic Illness

Getting A Diagnosis After 9 Years ~ EDS

February 26, 2020February 27, 2020 by JustSoElina

I still can’t believe I finally get to share this, I had honestly given up all hope that I would ever get a diagnosis. But on the 21st of January 2020 at 11:00am I received my diagnosis! I have Hypermobile Ehlers Danlos Syndrome, a genetic connective tissue disorder that effects every system of my body …

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Think Pieces

WHAT TAKING SIGN LANGUAGE CLASSES HAS TAUGHT ME SO FAR

October 28, 2019October 28, 2019 by JustSoElina

A few months ago I enrolled in a community AUSLAN (Australian Sign Language) course through my local deaf services. For those who don’t know sign language is “a visual form of communication that uses hand, arm and body movements to convey meaning” – NDP.org I have always wanted to learn sign language so I figured …

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Lifestyle wellbeing

How To Be A Good & Inclusive Role Model Online

September 28, 2019October 9, 2019 by JustSoElina

Being a good and inclusive role model in any situation is incredibly important and especially online. We live in a world where online people can be “cancelled”, bullied and discriminated against without even a second thought. But social media can also be an amazing and impactful space if used correctly and responsibly. As a blogger …

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Chronic Illness

CHRONIC PAIN SURVIVAL GUIDE FT YUYU BOTTLE

August 26, 2019August 26, 2019 by JustSoElina

*This post contains a gifted item from YuYu Bottle* “ I’m constantly in pain. Yes, constantly. Every single second. The pain is still there when I’m smiling. The pain is still there when I don’t talk about it. When I say “I’m fine” I have a very different definition than you do” – @strongerthanpots Chronic …

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Chronic Illness Lifestyle

Taking My Advocacy To The Next Level Ft InvisiYouth Charity

May 8, 2019May 8, 2019 by JustSoElina

I am so so excited to announce that I am a Global Brand Leader for an amazing charity called InvisiYouth. InvisiYouth is a nonprofit organization founded by Dominique Viel, that helps teens and young adults around the world with various chronic illnesses and disabilities gain the right lifestyle programs empowerment tools and fun events to …

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About Me

Recent Posts

  • Working With Chronic Illness Ft The National Youth Disability Summit
  • Shining A Light On Rare Diseases: How You Can Help
  • Adjusting to life without sound
  • The true meaning of indomitable spirit
  • Rare Disease Day 2021

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