Disclaimer – this post is not intended to bash doctors or the medical system, merely to bring to light the treatment millions around the world face on a daily basis. In honour of Rare Disease Day I wanted to cover a topic most aren’t often aware is an issue. That being the treatment of chronically …
I still can’t believe I finally get to share this, I had honestly given up all hope that I would ever get a diagnosis. But on the 21st of January 2020 at 11:00am I received my diagnosis! I have Hypermobile Ehlers Danlos Syndrome, a genetic connective tissue disorder that effects every system of my body …
A few months ago I enrolled in a community AUSLAN (Australian Sign Language) course through my local deaf services. For those who don’t know sign language is “a visual form of communication that uses hand, arm and body movements to convey meaning” – NDP.org I have always wanted to learn sign language so I figured …
Being a good and inclusive role model in any situation is incredibly important and especially online. We live in a world where online people can be “cancelled”, bullied and discriminated against without even a second thought. But social media can also be an amazing and impactful space if used correctly and responsibly. As a blogger …
*This post contains a gifted item from YuYu Bottle* “ I’m constantly in pain. Yes, constantly. Every single second. The pain is still there when I’m smiling. The pain is still there when I don’t talk about it. When I say “I’m fine” I have a very different definition than you do” – @strongerthanpots Chronic …
I am so so excited to announce that I am a Global Brand Leader for an amazing charity called InvisiYouth. InvisiYouth is a nonprofit organization founded by Dominique Viel, that helps teens and young adults around the world with various chronic illnesses and disabilities gain the right lifestyle programs empowerment tools and fun events to …