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Just So Elina

Tag: chronically ill teen

Chronic Illness

Draling With Medical Resentment

November 1, 2020November 1, 2020 by JustSoElina

Its hard not to feel angry when symptoms are ignored by medical professionals or recomended treatments create new problems and or take away more quality of life. If you don’t follow their treatment your seen as uncompliant. You need psychiatry to get over your “fear” of said treatment. But no one says anything when it …

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Chronic Illness wellbeing

A Letter To My Younger Self | EDS Awareness Month

May 31, 2020 by JustSoElina

To my younger self, I just want to start off saying I’m sorry, I’m sorry for everything that’s happening to you, I’m sorry that for a long time no one but your mum will believe you, when you say something is wrong. And I’m sorry for hating you for so long, It was not you …

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Chronic Illness

Why The Treatment Of Chronically Ill & Rare Disease Patients NEEDS To Change

February 29, 2020February 29, 2020 by JustSoElina

Disclaimer – this post is not intended to bash doctors or the medical system, merely to bring to light the treatment millions around the world face on a daily basis. In honour of Rare Disease Day I wanted to cover a topic most aren’t often aware is an issue. That being the treatment of chronically …

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Chronic Illness

Getting A Diagnosis After 9 Years ~ EDS

February 26, 2020February 27, 2020 by JustSoElina

I still can’t believe I finally get to share this, I had honestly given up all hope that I would ever get a diagnosis. But on the 21st of January 2020 at 11:00am I received my diagnosis! I have Hypermobile Ehlers Danlos Syndrome, a genetic connective tissue disorder that effects every system of my body …

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Chronic Illness Think Pieces wellbeing

Honouring The Season Of Life Your In

November 26, 2019November 26, 2019 by JustSoElina

I was recently listening to The Rise & Conquer Podcast Ep:37 Honour The Season Your In by Georgie Stevenson. In the episode Georgie said something that really hit home for me. ”Honour the season your in, stop looking around and feeling like your missing out or your not doing what you should be doing. Really …

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Chronic Illness

My Biggest Fear Is My Broken Body

November 4, 2019 by JustSoElina

The irony of this post is unreal, I wrote it a few days before halloween with the purpose of going up on Halloween night with a makeup look that to me showed how I’ve been feeling on the inside – broken. But that never happened as at 2am on halloween morning I ended up in …

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Chronic Illness

The Reality Of Living With A Chronic Illness

July 21, 2019July 21, 2019 by JustSoElina

Before I got sick I didn’t even know what a Chronic Illness was. Over 2 years later and I now know more about Chronic Illness than I ever thought I would. Over 2 years later I’m still fighting to get answers to what is wrong with me. Over 2 years later and I’m still fighting …

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About Me

Recent Posts

  • Working With Chronic Illness Ft The National Youth Disability Summit
  • Shining A Light On Rare Diseases: How You Can Help
  • Adjusting to life without sound
  • The true meaning of indomitable spirit
  • Rare Disease Day 2021

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