Disclaimer – this post is not intended to bash doctors or the medical system, merely to bring to light the treatment millions around the world face on a daily basis. In honour of Rare Disease Day I wanted to cover a topic most aren’t often aware is an issue. That being the treatment of chronically …
I still can’t believe I finally get to share this, I had honestly given up all hope that I would ever get a diagnosis. But on the 21st of January 2020 at 11:00am I received my diagnosis! I have Hypermobile Ehlers Danlos Syndrome, a genetic connective tissue disorder that effects every system of my body …
*trigger warning – bushfires* My home is on fire, Australia is currently being destroyed by the worst bushfires anyone has ever seen. Our country is no stranger to extreme weather, after all it is known as “The sunburnt country, a land of sweeping plains, of ragged mountain ranges, of droughts and flooding rains” – DM. …
I was recently listening to The Rise & Conquer Podcast Ep:37 Honour The Season Your In by Georgie Stevenson. In the episode Georgie said something that really hit home for me. ”Honour the season your in, stop looking around and feeling like your missing out or your not doing what you should be doing. Really …
The irony of this post is unreal, I wrote it a few days before halloween with the purpose of going up on Halloween night with a makeup look that to me showed how I’ve been feeling on the inside – broken. But that never happened as at 2am on halloween morning I ended up in …
A few months ago I enrolled in a community AUSLAN (Australian Sign Language) course through my local deaf services. For those who don’t know sign language is “a visual form of communication that uses hand, arm and body movements to convey meaning” – NDP.org I have always wanted to learn sign language so I figured …
Being a good and inclusive role model in any situation is incredibly important and especially online. We live in a world where online people can be “cancelled”, bullied and discriminated against without even a second thought. But social media can also be an amazing and impactful space if used correctly and responsibly. As a blogger …
This post is a collaboration post with Chia Samson, we chose the topic of gratitude and have both shared our experiences with gratitude and how we practice gratitude in our day to day lives. Check out Chia’s post The Gratitude Attitude With Elina Passant If I’m honest gratitude is something I really struggle with and …
Losing friends, at any age is hard, but it feels even harder when it happens in your teens, at school, and even harder when you’re chronically ill. I got glandular fever when I was 16, just before all my exams that year and consequently missed them all. I decided to leave the school I was at …
*This post contains a gifted item from YuYu Bottle* “ I’m constantly in pain. Yes, constantly. Every single second. The pain is still there when I’m smiling. The pain is still there when I don’t talk about it. When I say “I’m fine” I have a very different definition than you do” – @strongerthanpots Chronic …