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Just So Elina

Month: February 2020

Chronic Illness

Why The Treatment Of Chronically Ill & Rare Disease Patients NEEDS To Change

February 29, 2020February 29, 2020 by JustSoElina

Disclaimer – this post is not intended to bash doctors or the medical system, merely to bring to light the treatment millions around the world face on a daily basis. In honour of Rare Disease Day I wanted to cover a topic most aren’t often aware is an issue. That being the treatment of chronically …

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Chronic Illness

Getting A Diagnosis After 9 Years ~ EDS

February 26, 2020February 27, 2020 by JustSoElina

I still can’t believe I finally get to share this, I had honestly given up all hope that I would ever get a diagnosis. But on the 21st of January 2020 at 11:00am I received my diagnosis! I have Hypermobile Ehlers Danlos Syndrome, a genetic connective tissue disorder that effects every system of my body …

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